Adventures in Freelance Insanity
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To Be Continued
Verizon has done it's usual stellar job - I have been without internet since the beginning of August. Soon. They'll get here soon.
Today I started working again so I finally have access to the internet. I spent the morning getting caught up on my favorite blogs (i have more to read, but, as always, thanks to Katie, Len, Chris and Beth for your blogs).
I will catch you up on my life in one easy post, probably tomorrow. I might even post a pic of my beautiful son, who came home on Friday, his 2 month birthday. He is my joy.
Dont worry, this wont turn into an all-Jake-all-the-time site, although I may bore you from time to time with stories/pics.
12:06 p.m. - 2005-09-12
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Today
Yesterday they tried to remove one of the leads from his heart and tore a little hole in his little heart. They lost him and then got him back again.
As of last night he was doing good and resting. Im sure the next few days will be this up and down and Im just hoping that my own heart can take it.
This is my absolute favorite of the millions of pictures we have. Mostly because to me it looks like he's about to kill this newest person whose woken him up with their prodding and poking.
I keep telling him - be as bad as you need to be!
9:49 a.m. - 2005-07-15
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The Next Day
He came through his heart surgery with flying colors. I know that it was in no small part due to all the people who have so kindly kept him in their thoughts and prayers.
Every hour that he does well is a good hour now, and this first week - if he can make it through this first week the rest of life should be a breeze (or so I keep telling him).
So far so great - my boy is kicking butt!
Thank you for all your emails and especially the support - Ill try to respond soon!
9:52 a.m. - 2005-07-13
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Pray With Us
I went in for my 30 week checkup on Thursday July 7th and the doctor found possible signs of pre-enclampsia. I was admitted to the hospital and quickly developed severe pre-enclampsia.
They delivered Jacob Myles at 7:06 PM on July 9, 2005. He weighed 2 pounds, 14 ounces (2-14 is Valentine’s Day, sign of his great heart!) and he was 14 inches long. He’s lost a few ounces, but he’s still 14 inches.
Of course, being premature did not help his Hypoplastic Left Heart. He was taken right away to the NICU.
He’s resting comfortably there tonight, Mommy and Daddy have tucked him in and kissed him goodnight.
Tomorrow at 8 AM he will undergo the first of three palliative procedures designed to help his heart. They will be placing a shunt to connect his aorta and his pulmonary artery so his right heart can make the blood for his whole body. The second part of the first procedure involves cutting out or cleaning any unnecessary right heart stuff, and the third part will test the lungs.
Being a premie his lungs arnt as strong as they could be, and this procedure is the most dangerous of the three open-heart procedures in the Norwood.
Jake could use all your prayers and good wishes. It will be hard, but his mommy and daddy are sure he can do it – we are so proud of how far he’s come already!
I am exhausted but fine and I thank you with all my heart for your prayers and good wishes. I will update as soon as I can.
12:02 a.m. - 2005-07-12
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